Conference Report

 
Five hundred health care professionals and caregivers attended the International Spiritual Care Conference  "Compassion and Presence: Spiritual Care for the Living and Dying in Killarney, Ireland from 27-28 April 2009.

BEING A COMPASSIONATE PRESENCE

 


Photography © Chinch Gryniewicz

As a pioneer of hospice care for more than thirty years, and one of the founders of Rigpa's Spiritual Care Education Programme, Christine Longaker had been asked to lead the opening session of the spiritual care conference at the Europe Hotel in Killarney, south-west
Ireland. When she stood up to address her audience of five hundred healthcare professionals and carers, however, she was forced to admit that she was unable to provide them with a satisfactory definition of spiritual care.

 

In other conference settings, such an admission might have been a cause for concern, but she pressed on. “It is impossible to come up with one definition of spirituality and spiritual care that we all agree with,” she said, “and if you think about it, that makes sense, because we are all coming from a different place. We all have different life experiences and understandings of spirituality and spiritual care. Not being able to define it and fix it into a nice conceptual box is actually a good thing, because there is more space to see what it is in the moment, with the person we are with, rather than our concept of what it should be.”

 

Over the following two days, speakers from a wide variety of disciplines, professional backgrounds, medical specialties and trainings offered their own perspectives on spiritual caregiving. Sister Stanislaus Kennedy, a Catholic Sister of Charity who has worked with the homeless and disadvantaged in Ireland for many years, said spiritual care was about caring for someone “in a deeply human way... compassionately and, above all, with a deep respect.” Dr Ira Byock, a specialist in hospice, palliative and end-of-life care from New Hampshire, USA, said: “In one sense, I don't think there is such a thing as spiritual care. There is just care of whole persons... I begin by listening. If you are able and prepared and can listen, people will show you their spirituality.” As Dr Tony Bates, the founder of Headstrong, a youth mental health charity in Ireland, pointed out: “It is not to disregard the need for care in a very practical, physical way, but something more is needed.”

The work of Rigpa's Spiritual Care Programme, which hosted the conference, is inspired by the vision that Sogyal Rinpoche set out in The Tibetan Book of Living and Dying, in which he called for a more compassionate approach to the way in which we care for the living, and for the dying. The conference was timed to celebrate the opening of Rigpa's new Spiritual Care Centre at Dzogchen Beara on the south-west coast of Ireland, and it came at a moment when the importance of spiritual care is being increasingly recognised in healthcare,  particularly for those who are suffering from serious illness, or approaching the end of their lives. This was reflected by the presence in Killarney of consultants, doctors, nurses, nuns, priests, chaplains, psychiatrists, psychologists, counsellors, pastoral care workers, therapists and home carers, who had travelled from as far away as Australia, Japan, the United States and Saudi Arabia to attend.

 

In his talk on the opening morning, entitled The Heart of Compassion, Sogyal Rinpoche addressed a theme that continued throughout the conference. “If we truly want to help others, we must first help ourselves,” he said. “We can begin, first of all, by getting to know our own minds.” As he described the great benefits of meditation, Rinpoche showed that the twin subjects of the conference, compassion and presence, were inextricably linked. “As we connect with the purity of our inherent nature through meditation practice, what is revealed is our fundamental goodness—the good heart. Kindness, compassion and love simply exude; and as you integrate the practice mindfully in your life, the more you will find that not only you are in touch with yourself, but completely in touch with others.


Mindfulness and awareness

One of the main aims of the conference was to offer caregivers practical tools to support them in their work, where they can often face stressful conditions, long hours, and challenging interactions with patients and colleagues. Speakers led sessions on deep listening, compassionate self care, burn-out, stress and compassion fatigue. Workshops were held to give delegates the chance to experience meditation and other contemplative practices, such as compassion and loving kindness.

 

Jon Kabat-Zinn highlighted the importance of mindfulness and awareness as he presented his pioneering work in bringing mindfulness-based techniques into the mainstream of medicine and society.  The Centre for Mindfulness in Medicine, Health Care and Society that he founded in 1979 at the University of Massachusetts Medical School has served as the focal point for the application of mindfulness in many different settings. Kabat Zinn has worked with cancer patients, drug addicts, prisoners, lawyers, businessmen, Olympic athletes and US army veterans, to name just a few. Clinical studies have shown that mindfulness can be extremely effective in the treatment of stress, depression, pain and addiction. Hundreds of millions of dollars a year are now spent on research into the clinical applications of mindfulness, and much of that funding comes health insurance companies. Mindfulness-based programmes have sprung up all over the world. As one speaker observed: “If these techniques were a pill, they would create a megabucks market.”

 

Describing the gathering in Killarney as 'revolutionary', Jon Kabat-Zinn said: “This conference is all about presence. It is not so easy to actually show up, even in your own life, never mind for another person. There are an infinite number of moments when we only see what we want to see, and we don't see what we don't want to see. We don't even see our patients, because all we see are our concepts of them, our negative emotions towards them, our fears. None of that's a problem, if you are aware of it. If you are not aware of it, it can sink your boat and actually cause harm to the patient—and you won't even know it's happening. This is why awareness is so fundamental. Without awareness, we have no idea who we are or what we are doing, even if we are extremely well trained and competent.”

 

Some of the speakers described how their own spiritual practice had helped them to support patients who were sick or dying. Dr Ann Allegre, a Rigpa student who is medical director at Kansas City Hospice in the US, said: “My morning practice gives me a little bit of peace to carry into my day. It gives me the tools so that I can move through my fear and help others in ways that are suitable for them, so that I can figure out how to be present for them.”

 

Ursula Bates, a clinical psychologist from Dublin in Ireland, led a session on how mindfulness can be integrated into the workplace. In response to a question about what to do when you cannot make your voice heard in a team, she provided a glimpse of how she applied meditation in her working life. This is a point that's actually tearing the health service apart—where we begin to project our own dis-ease and stress out into a team. I meditate in the corridors as I move between my patients, and I live as radically as I can in the moment. I think we really need to try and do this in the health service. As your richness develops within, as you're nurtured by your own meditation, and as your compassion develops, these problems disappear. These are not real problems, these are illusions.”  

 

Quality of life

Several of the speakers in Killarney were specialists in palliative care, an approach that aims to improve the quality of life of patients and their families facing life-threatening illness, through the prevention and relief of suffering.

 

Dedicating his talk to Dr Mount, who was not able to attend, Dr Gian Borasio observed that when he started his medical studies in Germany in 1980, palliative medicine was virtually an unknown concept there. As a sign of the progress that has been made since then, three new professorships are being established this year at the Interdisciplinary Centre for Palliative Medicine at Munich University Hospital, of which Dr Borasio is a co-founder. The professorships will be in paediatric palliative medicine, social work in palliative care, and, perhaps most significantly, spiritual care.

 

As well as presenting studies and statistics, Dr Borasio and his fellow speakers told personal stories about the people they had cared for, and shared what they had learned from their patients. Palliative care, they said, could not be limited to the relief of physical symptoms. It was, explained Dr Ira Byock, about “treating what makes sense, what is reversible, what supports a meaningful quality of life as defined by the person and their family, but also not abandoning people to figure out how to live fully through the end of life; helping in that regard as well, getting beyond the avoidance or denial of dying that really diminishes the fullness of life.”

 

Important milestone

Delegates said they had found the conference to be energising, inspiring, uplifting, transformative and enriching. Some were inspired to take up meditation for the first time, or to introduce meditation sessions at the hospital where they worked. A psychologist working with young people suffering from cystic fibrosis said: “I have found it so difficult to know how to be with people who die young. There’s no intervention or text I can hide behind as a psychologist. I feel I’m starting on a journey now towards learning how to be with these young people. Thank you!”

Dr Gian Borasio described the conference as “a very important milestone in the effort to bring awareness of spirituality and spiritual needs back into modern medicine”. He said: “It was there centuries ago but it got lost through the advent of technological success, and now we are slowly bringing it back again. This conference is a very important first step in the journey, at the end of which it should be regarded as a self-understanding professional competence of every physician and healthcare professional to be sensitive to spiritual needs, as much as we are starting to understand that healthcare professionals need to be sensitive to cultural issues, gender issues and psycho-social issues. To put spiritual issues on the same level, not just in palliative care but throughout medicine, is the goal that will be ultimately reached, and this conference is an important milestone on the way to that.”

But for this to be successful, he said, studies would need to prove to healthcare administrators not only that spiritual care contributes to the well-being of patients, their families, and the carers themselves, but that it saves money. “To us it's a side-effect, but to them it's the most important thing, which is why we must prove it to them. We need to have a cost-efficient health system. If bringing in spirituality not only improves the well-being of all involved but even saves money and produces scientific data, then all the better. It is a win-win situation.